Fighting for a Healthier, More Equitable Future for All Youth
Whatever it is, the way you tell your story online can make all the difference.
At ImmuneTogether, we believe public health policy should reflect the real, lived experiences of young people with chronic conditions. That’s why we advocate for stronger protections, more research funding, and inclusive systems.
Whether it’s working toward better school accommodations, mental health access, or national research priorities,
our vision is clear:
a world where every young person with an autoimmune condition is seen, supported, and safe.
Bills We Support
🏛️ Chronic Condition in Schools Act (H.R. 6087 / S.2911)
Introduced in the U.S. House of Representatives (Pending Committee Review)
The Chronic Condition in Schools Act would require public schools to implement standardized protocols for supporting students with chronic illnesses—including autoimmune conditions. The bill promotes proper use of 504 plans, mandatory staff training, and accessible in-school health resources.→ How this helps: Many students are denied accommodations due to inconsistent policies or lack of awareness. This bill ensures that youth with autoimmune conditions receive the support they need to succeed in the classroom.
🏛️ Rare Disease Awareness & Equity Act (H.R. 4520 / S.1984)
Introduced in the U.S. Senate (Pending Committee Review)
This act promotes national awareness campaigns, expands funding for rare disease research, and includes a pediatric focus on invisible autoimmune diseases. It also supports outreach in underserved communities and data collection on diagnosis delays.→ How this helps: Youth with rare illnesses often go undiagnosed for years. This bill addresses the information and research gaps that delay treatment and care.
🏛️ Pediatric Research Equity Act (PREA)
Enacted – Actively Monitored & Supported
The Pediatric Research Equity Act (PREA) requires drug companies to study their products in children if the medication is likely to be used in pediatric populations. It ensures that children are not left behind when it comes to drug safety, dosing, and effectiveness—especially in complex conditions like autoimmune diseases.
→ How this helps: Many autoimmune medications are only tested in adults, leaving pediatric patients vulnerable to incorrect dosing or unapproved use. PREA helps ensure young people benefit from evidence-based treatments tailored to their age group.
We support continued funding, enforcement, and expansion of PREA to cover more autoimmune conditions in youth